Data Collection, Privacy and GDPR Policy

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Data Collection, Privacy and GDPR Policy

Document Control

Policy Name Data Collection, Privacy and GDPR Policy
Document Description  This policy has been written in line with the requirements of the Data Protection Act 1998 and General Data Protection Regulation (GDPR) (EU) 2016/679 EU Law.
Document Author Christopher Burgess
Core Officer Responsible Geoffrey Milton
Information Management Responsible Steering Committee
Status Live
Last Review Date Tuesday, 11 Jan 2022
Mandatory Review Date / Expirers Tuesday, 10 April 2023
Version Number 0.1
Person Responsible for Review Geoffrey Milton


This procedure will be deemed no longer supported if there is a newer version available or the document has expired.

 Version Control

Version Number Date Author Reason for New Version
0.1 2018-04-10 C. Burgess Document creation for GDPR

Bloomsbury Network are committed to complying with the General Data Protection Regulation and the Data Protection Act 2018, once enacted. Looking after the personal information you share with us is very important, and we want you to be confident that your personal data is kept safely and securely and to understand how we use it.

We have published this notice to help you understand

  • how and why Bloomsbury Network collect information from you;
  • who we share your information with, why and on what basis; and
  • what your rights are.

If we make changes to this notice we will notify you by updating it on our website. Bloomsbury Network will be what is known as the ‘Data Controller’ of the personal data you provide to us, and we will sometimes refer to ourselves in this notice as “we” or “us”. By Data Controller, this means Bloomsbury Network determines the purposes and way in which any personal data are, or will be, processed.

Should you need to contact us please write to:
Data Protection Officer Bloomsbury Network, Mortimer Market Centre Capper St, Bloomsbury, London WC1E 6JB or via quoting Security and Privacy Enquiry.

This privacy notice was last updated on 19th May 2018. Version 0.1

What information we collect when you register and why?

When you join our mailing list you will share your email address with us so that we can send you the latest events and news from the none profit Bloomsbury Network.

When you register for an event you need to provide us some personal information such as;

  • full name
  • contact number, and
  • email address.

During events you could be asked to complete an optional evaluation form(s).  These evaluation forms are anonymous as in; we do not ask for your name, full address or any details that could identify you. We do ask for your;

  • Ethnic Origin
  • Borough
  • Sexual Orientation
  • Gender
  • Various metrics on how the event has helped your diagnosis

Evaluation data is not personal identifiable, and the data is simply compiled for reporting. i.e. we have had 10 x White English attendees, 2 x Gay attendees, 12 x Have said they the event has helped. This data is used to make sure we are reaching all demographics and not excluding any populations, help us to continually improve our services and to demonstrate impact for funding.

Bloomsbury Network operates from the Mortimer Market Centre. The Mortimer Market Centre is a site controlled by the NHS Foundation; CCTV is in operation across the site for security monitoring purposes.  Bloomsbury Network does not control this data.

How do we use your information?

Data Protection says that we are allowed to use and share your personal data only where we have a proper reason to do so. The law says we must have one or more of these reasons and these are:

  • Contract – your personal information is processed in order to fulfil a contractual arrangement
  • Consent – where you agree to us using your information in this way e.g. for storing your email address
  • Legitimate Interests – this means the interests of Bloomsbury Network in managing our business to allow us to provide you with the best service in the most secure and appropriate way e.g. to transfer your data to certain Third Party’s .
  • Legal Obligation – where there is statutory or other legal requirement to share the information e.g. when we have to share your information for law enforcement purposes.

Here is a list of the ways that we may use your personal information, and which of the reasons described above we rely on to do so. Where we list legitimate interests as a reason, we also describe below what we believe these legitimate interests are.


What We Use Your Personal Information For Our Reasons (Legal Basis) Our Explanation Of Bloomsbury’s Legitimate Interests
Marketing communications to inform you of events, news and new reaserch and studies. Provide you with event advertising. Consent
Notify you of your ticket status. Consent & Legitimate interests


Process efficiency in dealing with such activity, and help you make the event or attend the service.
Booking of event or service Consent


Who we share your information with and why

Bloomsbury Network works with a number of trusted agencies and businesses in order to provide you the high quality events and services you expect from us such as charities, none profit organisations, Medical Research universities amongst others. Some examples of the categories of third parties with whom we share your data are:

Event Partners – Bloomsbury Network works with a number of trusted partners who deliver events and services on our behalf. All partners are subject to thorough security checks, and will only hold the minimum amount of personal information needed in order to fulfil the orders you place or provide a service on our behalf.

IT Companies – Bloomsbury Network works with business who support our website and other business systems.

Marketing Companies– We work with marketing companies who help us manage our electronic communications with you on our behalf.

Automated Decisions

We do not use your data in any automated decisions.

Your Rights

Your personal data is protected by legal rights, which include your rights to object to our processing of your personal data; request that your personal data is erased or corrected; request access to your personal data.

For more information or to exercise your data protection rights, please contact us using the contact details above. You also have a right to complain to the Information Commissioner’s Office, which regulates the processing of personal data.

Keeping in touch with you

We want to keep you up to date with information about new events, news, research and improvements to our website. When you subsribe to the Network we will ask you if you want to receive this type of marketing information.

Bloomsbury Network will not share your information with companies outside of Bloomsbury Network for their marketing purposes.

If you decide you do not want to receive this marketing information you can request that we stop by writing to the Data Protection Officer Bloomsbury Network, Mortimer Market Centre Capper St, Bloomsbury, London WC1E 6JB or via quoting Security and Privacy Enquiry or the unsubscribe link within the email.

You may continue to receive mailings for a short period while your request is dealt with.

How long we keep your information

Personal identifiable information on event booking data is kept for a max of one month post the event scheduled time.

Your email address for newsletter subscription is kept for a maximum term of 2 years post the last action on a newsletter.

If we collect your personal information, the length of time we retain it is determined by a number of factors including the purpose for which we use that information and our obligations under other laws.

We may need your personal information to establish, bring or defend legal claims. For this purpose, we will always retain your personal information for 7 years after the date it is no longer needed by us for any of the purposes listed under How we use your information above. The only exceptions to this are where:

  • the law requires us to hold your personal information for a longer period, or delete it sooner;
  • you exercise your right to have the information erased (where it applies) and we do not need to hold it in connection with any of the reasons permitted or required under the law;
  • we bring or defend a legal claim or other proceedings during the period we retain your personal information, in which case we will retain your personal information until those proceedings have concluded and no further appeals are possible; or
  • in limited cases, existing or future law or a court or regulator requires us to keep your personal information for a longer or shorter period.

Specific Time Frames

Personal identifiable information on event booking data is kept for a max of one month post the event scheduled time.

Your email address for newsletter subscription is kept for a maximum term of 2 years post the last trackable action on a newsletter i.e. open or click through

What are your rights

You are entitled to request the following from Bloomsbury Network, these are called your Data Subject Rights and there is more information on these on the Information Commissioners website

  • Right of access –to request access to your personal information and information about how we process it
  • Right to rectification –to have your personal information corrected if it is inaccurate and to have incomplete personal information completed
  • Right to erasure (also known as the Right to be Forgotten) – to have your personal information erased. Contact the Data Protection Officer Bloomsbury Network, Mortimer Market Centre Capper St, Bloomsbury, London WC1E 6JB or via
  • Right to restriction of processing – to restrict processing of your personal information
  • Right to data portability – to electronically move, copy or transfer your personal information in a standard form
  • Right to object – to object to processing of your personal information
  • Rights with regards to automated individual decision making, including profiling –rights relating to automated decision making, including profiling

If you have any general questions about your rights or want to exercise your rights please contact

You have the right to lodge a complaint with a data protection regulator in Europe, in particular in a country you work or live or where your legal rights have been infringed. The contact details for the Information Commissioner’s Office (ICO), the data protection regulator in the UK, are available on the ICO website where your personal information has or is being used in a way that you believe does not comply with data, however, we encourage you to contact us before making any complaint and we will seek to resolve any issues or concerns you may have.

Bloomsbury Network

Empathy Education Empowerment

The Bloomsbury Network, Mortimer Market Centre, Off Tottenham Court Road, London WC1E 6JB